Welcome to ECHDO

The European Congenital Heart Disease Organisation works for Congenital Heart Disease (CHD) patients of all ages, gaining knowledge from parents of children with CHD and from adult patients to achieve common goals.

Our vision is to share information, knowledge and experience in order to improve access to the best possbile care and treatment for all the people affected by CHD in Europe. 

As increasing numbers of heart children survive into adulthood, ECHDO members include both parent support groups and support organisations with a focus on Grown-Up Congenital Heart Patients (GUCHs).