Cyprus
Association of Parents and Friends for Children with Heart Disease
Website: www.pediheart.org.cy
Contact Number: +357 22315196
Address: Grammou 11, Karyatides Bld. 15, App. 5, 2006 Strovolos, Nicosia
Primary Contact: Stella Eleftheriadou
Email: pediheart@cytanet.com.cy
Main Goals: Provision of help and support and addressing problems experienced by people with congenital heart disease (CHD).
Organisation Type: Parent and patient organisation
Finland
Sydänlapset ja -aikuiset ry – Finnish Association for Heart Children and Adults
Website: www.sydanlapsetjaaikuiset.fi
Contact Number: +358 44 2727 717
Primary Contact: Katja Laine
Email: katja.laine@sydanlapsetjaaikuiset.fi
Main Goals: Supporting approximately 450 children born each year in Finland with congenital heart defects, many of whom require surgery, and advocating for improved care and lifelong support.
Organisation Type: Parent and patient organisation
France
Association Nationale des Cardiaques Congénitaux (ANCC)
Website: http://www.ancc.asso.fr
Contact Number: +33 6 13 09 18 55
Address: Centre des Côtes, Les Loges-en-Josas, France
Primary Contact: Sebastien Pillias
Email: sebastien.pillias@ancc.asso.fr
Germany
Bundesverband Herzkranke Kinder e.V. (BVHK)
Website: www.bvhk.de
Contact Number: +49 241 912332
Address: Vaalser Str. 108, 52074 Aachen, Germany
Primary Contact: Sebastian Kahnt
Email: info@bvhk.de
Main Goals: Support for families with children affected by congenital heart disease.
Organisation Type: Parent and patient organisation
Bundesverein JEMAH e.V.
Website: www.jemah.de
Contact Number: +49 6032 9910 310
Address: Postfach 11 10, 97627 Bad Königshofen, Germany
Primary Contact: Christina Pack
Email: info@jemah.de
Main Goals: Improving living conditions, medical care, visibility and social participation for adolescents and adults with congenital heart defects (EMAH) in Germany.
Organisation Type: Adult patient organisation
Greece
Panhellenic Heart Disease Association
Website: www.kardiopatheia.gr
Contact Number: +30 6975592614
Address: 8 Kassavetis Street, 11253 Patisia, Athens, Greece
Primary Contact: Konstantinos Chortis
Email: kchortis@yahoo.gr
Main Goals: Legal and organisational continuation of the Panhellenic Association of Patients with Congenital Heart Disease, advocating for patients nationwide.
Organisation Type: Parent organisation
Ireland
Heart Children Ireland
Website: www.heartchildren.ie
Contact Number: +353 85 723 7797
Address: Carmichael Centre, North Brunswick Street, Dublin 7, D07 RHA8
Primary Contact: Sheila Campbell
Email: sheila@heartchildren.ie
Main Goals: Supporting people of all ages with congenital heart disease to live confidently, stay well and enjoy life to the fullest.
Organisation Type: Parent and patient organisation
Italy
AICCA ETS
Website: https://www.associazioneaicca.com/
Contact Number: +39 252774675
Address: Via Giovanni Pascoli 37, 20097 San Donato Milanese (MI), Italy
Primary Contact: Giovanna Campioni
Main Goals: Supporting and accompanying people and families born with congenital heart disease through psychosocial support, humanisation of care projects and advocacy campaigns.
Organisation Type: Adult patient organisation
Malta
Beating Hearts Malta
Website: www.beatingheartsmalta.org
Contact Number: +356 79468338
Address: Souris, Triq Esprit Barthet, Madliena, SWQ 1507, Malta
Primary Contact: Katrina Aquilina
Email: katrina.aquilina@gmail.com
Main Goals: Offering support and assistance to adults and children born with congenital heart defects.
Organisation Type: Parent and patient organisation
Norway
Voksne med medfødt hjertefeil (VMH)
Website: www.vmh.no
Address: Schweigaards gate 12, 0188 Oslo, Norway
Primary Contact: Anne Giertsen
Email: post@vmh.no
Main Goals: Nationwide association representing adults (18+) with congenital, genetic or early acquired heart conditions.
Organisation Type: Adult patient organisation
Slovakia
Nadácia Detského kardiocentra
Website: https://nadaciadkc.sk/
Contact Number: +421 915 699 551
Address: Pod Krásnou hôrkou 1, 833 48 Bratislava, Slovakia
Primary Contact: Katarina Stano
Email: katarina.stano@gmx.com
Main Goals: Supporting the development of paediatric cardiology in Slovakia and assisting children with heart conditions.
Organisation Type: Adult patient organisation
Spain
Fundación Menudos Corazones
Website: https://www.menudoscorazones.org/
Contact Number: +34 913736746
Address: Calle Doctor Castelo 49, 1º, 28009 Madrid, Spain
Primary Contact: Amaya Sáez
Email: amayasaez@menudoscorazones.org
Main Goals: Supporting people with congenital heart disease and their families.
Organisation Type: Parent and patient organisation
Association of Congenital Heart Disease (AACIC)
Website: www.aacic.org
Contact Number: +34 934586653
Address: Carrer Martí i Alsina 22, Local, 08031 Barcelona, Spain
Primary Contact: Mireia Salvador
Email: info@aacic.org
Main Goals: Supporting children, teenagers and young adults with congenital heart disease.
Organisation Type: Adult patient organisation
Switzerland
CUORE MATTO – Herzfehler Schweiz
Website: https://herzfehler-schweiz.ch/
Contact Number: +41 78 257 27 95
Address: CH-3000 Bern, Switzerland
Primary Contact: Luca Zambrino
Email: praesidium@herzfehler-schweiz.ch
Main Goals: Supporting and advising adolescents and adults with congenital heart defects and improving quality of life through networking and advocacy.
Organisation Type: Adult patient organisation
The Netherlands
Patiëntenvereniging Aangeboren Hartafwijkingen
Website: https://aangeborenhartafwijking.nl/
Contact Number: +31 6 20039393
Address: Molendijk 12, 3632 EN Loenen aan de Vecht, The Netherlands
Primary Contact: Judith van de Meerakker
Email: onderzoek@aangeborenhartafwijking.nl
Main Goals: Providing information, support, advocacy and representation for people with congenital heart defects and their families.
Organisation Type: Parent and patient organisation
United Kingdom
Somerville Heart Foundation
Website: https://sfhearts.org.uk/
Contact Number: +44 1473 252007
Address: 7 Friars Courtyard, 30–32 Princes Street, Ipswich, Suffolk, IP1 1RJ, United Kingdom
Primary Contact: Michelle Woods
Email: michelle.woods@sfhearts.org.uk
Main Goals: Supporting young people and adults born with congenital heart disease across the UK.
Organisation Type: Adult patient organisation
Children’s Hearts UK
Website: https://chfed.org.uk/
Contact Number: +44 300 561 0065
Address: Suite 12, Lakes Industrial Park, Braintree, Essex, CM7 3RU, United Kingdom
Primary Contact: Rajwant Kaur Singh
Email: rajwant@chfed.org.uk
Main Goals: National charity championing children with heart conditions and empowering families and carers.
Organisation Type: Parent and patient organisation