ECHDO is entering a new chapter. At our General Assembly in Croatia earlier this year, we elected a new Board — with Karen Tomlin (UK) as our new President.

Karen is a mother to a 16-year-old son born with critical aortic stenosis. While she once wore the hat of a nurse, it was only after becoming a medical parent herself that she fully experienced the other side of the healthcare system. “The early days of diagnosis were very lonely and scary. I made it my mission to make sure others weren’t left in the same situation.”