Bundesverband Herzkranke Kinder e.V.
Main goals:
- Support for families with CHD Patients;
- Exchange of information: self-help-groups, professional helpers (clinics) and rehabilitation;
- Research of CHD;
- FOR Family Orientated Rehabilitation;
- Sports-camps e.g. horse-back-riding-weeks, sailing camps;
- psycho-social and legal advice;
- raise public awareness for CHD chronically ill children;
- Organisation of meetings and symposia at the "day of Congenital heart disease" 5th May each year;
- Integration of CHD-children and adults in our society.
Contact
Bundesverband Herzkranke Kinder e.V.
Hermine Nock
Kasinostr. 66
52066 Aachen
www.bvhk.de
Email: bvhk-aachen(at)t-online.de
Phone: +49- (0)241-91 23 32
Bundesvereinigung JEMAH e.V.
Main goals:
- Medical and rehabilitative care of JEMAH in Germany;
- Sharing experience with national and regional organisations for parents;
- Publication of a magazine and information brochures;
- Events and participation in symposia with doctors and other professionals;
- Regional group meetings;
- Help through our helpline providing information on socio-legal and psychosocial assistance.
Contact
Bundesvereinigung JEMAH e.V.
Torben Geier
Geschäftsstelle
Kasinostr. 66
52066 Aachen
www.jemah.de
Email: info(at)jemah.de
Phone: +49 - (0)241-55941738