News Archive

Article Title
Date Published
Madga's Story 02/09/2026 - 09:07
Matylda's CHD Story 02/09/2026 - 09:04
This is CHD 02/08/2026 - 09:48
ECHDO Welcomes New President and Board 11/24/2025 - 10:34
Save the date - AGM 2026 11/06/2025 - 14:57
ECHDO Webinar: From Fetus to adulthood in CHD 09/05/2025 - 15:46
ECHDO Elected 2025 Board 05/20/2025 - 12:10
Prof. Edward Callus given ECHDO Fellow Award 05/16/2025 - 11:22
Join our Board 04/11/2025 - 15:48
Advertise in our 2025 Annual Report, Digital Magazine edition! 03/28/2025 - 16:23
AGM 2025 - Croatia 12/17/2024 - 13:48
How to help Yourself 10/10/2024 - 14:22
Statistics on Mental Health 10/07/2024 - 14:00
Konstantinos' Story 10/04/2024 - 14:32
Healing Hearts and Minds 10/02/2024 - 14:55
Katarina’s story 09/30/2024 - 11:41
HeartToHeart Autumn Campaign - mental health in CHD 2024 09/27/2024 - 16:13
ECHDO Annual General Meeting 2024 - PAH Overview 08/30/2024 - 14:37
ECHDO End of Year Update 2023 12/20/2023 - 15:07
2024 AGM Dates Announced 12/20/2023 - 13:22
Fraud Emails from ECHDO 11/17/2023 - 12:38
Fraud e-mails sent in the name of ECHDO 11/17/2023 - 11:57
ECHDO Annual general meeting will be held as online -meeting 06/03/2020 - 19:18
Newsletter 18/12/2019 12/19/2019 - 00:38
European Youth Camp - EYC 2019 12/19/2018 - 14:30
Newsletter 02/2018 12/19/2018 - 13:49
AGM 2019 - Reykjavik, Iceland 12/19/2018 - 08:00
Newsletter 01/2018 12/18/2018 - 19:47
Short questionnaire for members and partners 02/09/2018 - 17:01
AGM - Leicester 2018 12/19/2017 - 11:39
AGM- Nicosia 2017 12/20/2016 - 17:40
AGM - Rotterdam 2016 01/18/2016 - 18:08
AGM - Milan 2015 04/24/2015 - 13:16
Save the date! 04/24/2015 - 13:04
New webpage launched! 04/24/2015 - 13:02

Madga's Story

Mental and physical health have never been separate for me.

I was born in 1960 with a congenital heart condition - Ebstein anomaly. But I didn’t know I was ill. And neither did most people around me.

As a child, I had pain I couldn’t explain. On the swing, for example, I'd feel something “funny.” People would call me a sissy. So I learned to sing instead of scream. That became my way of coping.

My mother taught me two things that shaped my mental health for life:
step by step — and where there is a will, there is a way.

No pity. Just encouragement.

Matylda's CHD Story

We reside in Iceland. At 30 weeks into my pregnancy, I learned that my unborn daughter had pulmonary atresia with intact ventricular septum (PA/IVS). I consider myself fortunate that this condition was detected while I was still pregnant. However, this revelation came shortly after we had to evacuate our town because of possible volcanic activity, and just days later, my partner’s mother passed away. We were still grappling with our loss when we received this news, leaving us in a state of complete shock.

This is CHD

Annabel Breeman's CHD Story

What is mental health for you? For me, it depends on when you ask in my life. As a 38 year old CHD I faced many happy and hard situations during my live; mentally and physically. Most situations were mentally good to handle. Only the two most difficult moments of my life, happened after the two happiest moments of my life.