Bundesverband Herzkranke Kinder e.V.
Main goals:
- Support for families with CHD Patients;
- Exchange of information: self-help-groups, professional helpers (clinics) and rehabilitation;
- Research of CHD;
- FOR Family Orientated Rehabilitation;
- Sports-camps e.g. horse-back-riding-weeks, sailing camps;
- psycho-social and legal advice;
- raise public awareness for CHD chronically ill children;
- Organisation of meetings and symposia at the "day of Congenital heart disease" 5th May each year;
- Integration of CHD-children and adults in our society.
Contact
Bundesverband Herzkranke Kinder e.V. (BVHK)
Sebastian Kahnt (Geschäftsführer)
Vaalser Straße 108, 52074 Aachen
52066 Aachen
www.bvhk.de
Email: info@bvhk.de
Phone: +49- (0)241-980 948 15
Bundesvereinigung JEMAH e.V.
Main goals:
- Medical and rehabilitative care of JEMAH in Germany;
- Sharing experience with national and regional organisations for parents;
- Publication of a magazine and information brochures;
- Events and participation in symposia with doctors and other professionals;
- Regional group meetings;
- Help through our helpline providing information on socio-legal and psychosocial assistance.
Contact
Bundesvereinigung JEMAH e.V.
Miss Pack
PO Box 11 10
97627 Bad Koenigshofen
www.jemah.de
Email: info@jemah.de
Telephone: 06032 9910310
Fax: 06032 9910319