Patiëntenvereniging Aangeboren Hartafwijkingen (PAH)
Main goals
Give support concerning congenital heart disease by
- Organising patient contacts (children, parents, adults, partners);
- Providing accurate information (website, Newsletter, Member magazine ‘Sinus’);
- Developing good quality of care (physically and psycho-social).
Contact
Patiëntenvereniging Aangeboren Hartafwijkingen (PAH)
Postbus 418, 2000 AK Haarlem, the Netherlands
E-mail: info@aangeborenhartafwijking.nl
Phone: +31 6 200 39393
Key contact: Roy Boere, board member
https://aangeborenhartafwijking.nl/
Secretary: Martine Bruin